Wednesday, June 1, 2005

Eye of the Storm

We've been transferred to the oncology floor - 8N (floor 8 north side)

He has Acute Lymphocytic Leukemia - A.L.L. - 'B' Cell.

It has spread to his lymph nodes and his spleen. They are doing a spinal tap tomorrow to check that and they will begin the chemo tomorrow night I believe.

His bone marrow was completely packed. They didn’t see any other cells aside from the Leukemia. He got blood this morning (he's B positive by the way, Jon's type, I'm O+, something you wish you didn’t know...) He is getting platelets soon. Actually they are up here now, but they thought they'd let him play in the playroom for awhile first since he's up to it. Still not eating or walking, but they imagine by the end of the first week of chemo he'll being feeling 100% better. I guess we're in here at_least another week. It all depends on how he does. Then we will be treated on an out-patient basis, but for the first 4 months it will be 1-2ce a week. After that weekly., then monthly for the next 3-1/2 years.

They treat boys longer since it tends to reappear in them in their groin. Josh has it in his arm pit and groin now. and I mentioned the spleen.

They sent his bone marrow out to see if he has the Philadelphia type thingy --- that will take another week to know about.

I don’t know what else to say... think maybe I've covered it... I broke down when we got to this floor and seen all the kids. We went from a private room to sharing one with a little baby. A boy. Haven’t really talked to his dad (who's there with him) but guessing it's gonna be a tough night. Gonna take some getting used to. Especially keeping Josh quiet enough to not wake up the baby (I'd guess he's around a year).

Jon's heading down stairs now, I'm gonna get this sent off now -- will post again.

12 comments:

Patti Zappia said...

SUNDAY, JULY 10, 2005 10:23 AM, CDT

All my prayers are with all of you. Always in my heart, now and forever. All my love to you's.

Love,

mom & Gramma
midget_2@verizon.net

Christi Horvath said...

SUNDAY, JULY 10, 2005 08:16 PM, CDT

WE HAVE JOSH IN OUR HEARTS AND PRAYER FOR A SPEEDY REMISSION.WE LOVE YOU JOSHY. UNCLE JIM AND FAMILY.

CHRISTI HORVATH quissy74@aol.com
ERIE, PA
United States

Haley Peterson said...

SATURDAY, JULY 09, 2005 10:43 PM, CDT

Hi Joshua,

I was just randomly typing in names into the slot for "name" on the new style caringbridge pages and stumbled upon Josh's. My name is Haley and I am 16 years old. I have both Wilm's Tumor and Osteosarcoma..its a long story. I hope we can chat sometime or something, feel free to visit my web page and sign the guestbook. I hope Josh is doing well, he is a real cutie!

Love,
Haley
www.caringbridge.org/visit/hays

Haley Peterson babyfacehly13@yahoo.com
rollinsford, NH
United States

Amy D'Onofrio said...

MONDAY, JULY 11, 2005 10:47 AM, CDT

Joshy- Everyone here at Great Lakes Home Healthcare Pharmacy are praying for a quick recovery, besides I here that Spiderman needs a sidekick!!! Get well very, very soon!!!

Amy

sissy stallsmith said...

MONDAY, JULY 11, 2005 10:54 AM, CDT

well hello there my precious baby boy, i love you so very much i am having a hard time writing ,but here we go again i love you so much and i know everything will a okay, i think about you everyday and pray that god is hearing my prayers, also i know that shue is wathing over you as well ,things will be tough but we are a strong family, almost as strong as say spiderman,will write more later, love you SISSY.

sissy stallsmith amy.donofrio@hamot.org

Bobbi Kraft said...

MONDAY, JULY 11, 2005 12:08 PM, CDT

Josh and family,

I work with your aunt and wanted to tell you that my thoughts and prayers are with you. I know that you are trying hard to get well...stay strong I'm sending you warm thoughts to get better soon

Bobbi Kraft

Marian Urban said...

MONDAY, JULY 11, 2005 12:38 PM, CDT

Hi Josh, you look like such a sweet boy, I don't know you but I am so proud of you. You're very brave. You and your family will be in all my prayers. I will pray for a very quick recovery, and for love and peace to surround you all.

To Josh's family: I work at GLHHS with Shelly and was so touched by your story. As a new mom I can only image how heart breaking it is to have your baby suffer. (I cried just having my baby girl get an IV put in.) I don't have much to offer on the lines of monetary contributions, however I do have time and energy to offer, please let me know how I can be of assistance to your family. I submitted my address and phone number, and would be happy to help in any way.

May God Bless you all!!

Marian Urban marian.urban@hamot.org
North East, PA
United States

Marian Nicks said...

MONDAY, JULY 11, 2005 01:38 PM, CDT

Hi Josh,

You are so brave, and so cute!
The very best with your treatments, little-man!
We are praying really hard for you & your family.

God Bless you all. {: - )
Marian & Jerry
merjer67@yahoo.com

Pamela McKelvey said...

MONDAY, JULY 11, 2005 01:58 PM, CDT

I hope the best for you. Please get well.

Pamela McKelvey

Chris Rodriguez said...

MONDAY, JULY 11, 2005 02:30 PM, CDT

Thinking about all of you.

Chris Rodriguez
PA

Lorraine Lepkowski said...

MONDAY, JULY 11, 2005 03:44 PM, CDT

You are constantly in my prayers.

Lorraine Lepkowski

Frank Kinsinger said...

MONDAY, JULY 11, 2005 06:47 PM, CDT

You are always in our prayers!

Frank & Susan

Frank Kinsinger