Wednesday, December 28, 2005

we don't need no shtinkin' hair

Over the holiday someone commented on Josh’s hair or lack thereof and asked if we cut his hair that way.

DUH


Okay... now I know Josh's hair is in the stages of growing back and does look kind of funny, picture patches of stragglers peppering his head. Not stubble over his whole head. Not a crew... but a few 1/4" hairs here and there in various spots on his head.

Now what kinda shaver do you suppose does that?


And if they do make one ---- I want my money back!


So I relayed this story to my very bestest buddy that understands all -- and she retaliates these select comments that I wish I woulda had on hand THEN kenyit


So for future reference and for a worthwhile laugh:


1) I washed it with some new shampoo and it all fell out and we're in the middle of a huge lawsuit.

2) his sister got mad at him for messing with her stuff and shaved it off in the night.

3) it's a new cult thing

4) religious preference

5) we don't really like him

6) our hairdresser was having a bad day

7) I'll never leave him home with dad again....

8) got it stuck in the conveyor belt at the grocery store... it was a big to do.... couldn't be saved

9) he wants to join the army later and figured he'd get in the good graces of his sergeant now...

10) don't need no shtinkin' hair!

11) brother pulled it out, one piece at a time....

12) ever see home alone?


ROFL -- thanks Alina – Love ya girl!!

Friday, December 23, 2005

I Remember Christmas




I wrote this article for a “Reader Participation” they hold this time of year for our local newspaper. Turns out when I submitted the article the columnist was already on vacation and had scheduled all the submissions already. But finding the perfect opportunity to not let my long-windedness go to waste ;-) I decided to be lazy and cut-n-paste another journal entry….




I hope everyone has a very Merry Christmas – and know how much we love you all!


I remember Christmas...


I remember the Christmas spirit.

This summer my not quite 3-year-old was diagnosed with Leukemia. It's a devastating blow to anyone's family to have a loved one thwarted with the "C" word, but your own family, your own child...

Because of Josh's age, he has to be treated in Pittsburgh. There aren't any pediatric oncology facilities in this city. So we make several monthly, or even weekly and sometimes bi- or tri-weekly visits 120 miles away. Our home away from home.

Over the last 6 months we really have found a sense of community. My workplace pulled together, our daughters' softball league, our friends, our church and especially our family. They've all made us feel like one giant circle.

We found family where we didn't know we had it. Our "new" used-van found miles it never knew it would see. Our other children found maturity beyond most adolescents' responsibilities. Grandma and Grandpa found patience that would make any saint pale in comparison, the vigor to chase a toddler, the knowledge to do homework all over again and versatility deal with a teenager.

We all found hope.

When the holiday rolled around I was ready! Determined that this would be the best year yet. The day after Thanksgiving came and as our tradition goes, out came the decorations and up went the tree. Not a real one (as Josh can not be exposed to the potential molds) but a fine representation to hold all our collected memories of year's past. Dad and daughters lit up the outside of the house, and I went around doing my yearly dusting as I made room for the holiday display. Then daddy went hunting and the kids and I made candy, burnt fudge, chased away thieving hands, and baked pre-formed cookies. It was a sentiment that had since been lost in the material madness that comes with the season. It was a celebration of life, the life we have now.

Just a week into our celebration Josh was hospitalized with a blood infection. What was thought to be a weekend mend in Pittsburgh, turned into a weeklong overhaul. Once again family pulled together and carted children to school, from school, from basketball practice, from after school activities. They made dinners for 6 instead of 2, they rearranged sleeping arrangements, harbored the family dog, did homework... once again.

And work was missed. And vacation had already been exhausted from previous hospital stays. But just when you resolve that everything will be okay despite it all, and that you will make do with the "sentiments", the real reason of the season, more people come forward with their own camaraderie.

A family drives from Buffalo to deliver a puppy. The church and its families calls and calls again. Visiting nurses. Neighbors. Family lavishes gifts from Kentucky, Louisiana, Maryland, Texas, and across the state in our very own Pennsylvania -- beyond even previous years' splendor. And although they carry material possessions, the feeling they deliver goes beyond any emotion I can convey on paper.

The true meaning of Christmas.

And as our priest pointed out, sometimes Santa isn't always dressed in a big red suit.

I remember Christmas... and this one will forever be etched in our hearts!

Monday, December 12, 2005

12 Days of Chemo

On the 1st day of Christmas my doctor gave to me some platelets on an IV
tree

On the 2nd day of Christmas my doctor gave to me two spinal taps
and some platelets on an IV tree

On the 3rd day of Christmas my doctor gave to me three heparin flushes
two spinal taps
and some platelets on an IV tree

On the 4th day of Christmas my doctor gave to me four calling cards
three heparin flushes
two spinal taps
and some platelets on an IV tree

On the 5th day of Christmas my doctor gave to me FIVE STEROID PILLS...
four calling cards
three heparin flushes
two spinal taps
and some platelets on an IV tree

On the 6th day of Christmas my doctor gave to me six slim jim cravings
FIVE STEROID PILLS...
four calling cards
three heparin flushes
two spinal taps
and some platelets on an IV tree

On the 7th day of Christmas my doctor gave to me seven buckets for puking
six slim jim cravings
FIVE STEROID PILLS...
four calling cards
three heparin flushes
two spinal taps
and some platelets on an IV tree

On the 8th day of Christmas my doctor gave to me eight scales a tilting
seven buckets for puking
six slim jim cravings
FIVE STEROID PILLS...
four calling cards
three heparin flushes
two spinal taps
and some platelets on an IV tree

On the 9th day of Christmas my doctor gave to me nine nurses nursing
eight scales a tilting
seven buckets for puking
six slim jim cravings
FIVE STEROID PILLS...
four calling cards
three heparin flushes
two spinal taps
and some platelets on an IV tree

On the 10th day of Christmas my doctor gave to me ten hairs a growing
nine nurses nursing
eight scales a tilting
seven buckets for puking
six slim jim cravings
FIVE STEROID PILLS...
four calling cards
three heparin flushes
two spinal taps
and some platelets on an IV tree

On the 11th day of Christmas my doctor gave to me eleven ports for pushing
ten hairs a growing
nine nurses nursing
eight scales a tilting
seven buckets for puking
six slim jim cravings
FIVE STEROID PILLS...
four calling cards
three heparin flushes
two spinal taps
and some platelets on an IV tree

On the 12th day of Christmas my doctor gave to me twelve thermometers
throbbing
eleven ports for pushing
ten hairs a growing
nine nurses nursing
eight scales a tilting
seven buckets for puking
six slim jim cravings
FIVE STEROID PILLS...
four calling cards
three heparin flushes
two spinal taps
and - some - plate-lets - on an IV treeeee!

Monday, December 5, 2005

Day by day

Well, we're still here, cultures are still coming back positive. Day by day...

That means Wednesday at the earliest. They've stopped all antibiotics excet the "heavy-hitter" (as his doctor put it today), Vancomycin, and based on the kidney tests they ran yesterday have upped his IV fluids. They are hoping the "sensitivity testing" they begun will reveal an better antibiotic to use that wont be so harsh. Otherwise Josh is doing well. Keeping in good spirits. The doctors and especially the nurses are wonderful here! They go all out to make everyone feel at home. Today Jon was coming back from doing errands and got hit in the back by a plastic hockey puck gelakguling One of the male nurses and his patient were in the hall playing Hockey. How funny is that?

Anyway, we miss home the most. But are thankful that the kids are in best hands. Just wish we werent so far apart and missing them all so much!

Day by day...

Sunday, December 4, 2005

The Impatient Inpatient

REAL quick as Josh plays on the floor with his Legos.

We are in the hospital. Came home from clinic on Thursday and Josh started to run a fever. Turns out he has a blood infection.

Josh is on 4 different antibiotics right now, actually they stopped one this afternoon as they decided it wasnt targeting his specific bugs.

The cultures are showing two separate things growing.

One is a gram positive coxsackie, which I am told, is most likely a staph, which is treated by the Vancomycin he is already on.

The other is a rod negative something-or-another. They dont know the specifics on this one yet, but are calling in the infectious disease people and will go from there. We are wont bust out of here until Tuesday or Wednesday at the earliest. His cultures need to come back negative at least twice before they'll spring us.

So far, as of this morning, they are still growing postive. We'll see tomorrow if this morning's draw is negative. That's that prayer. That one of the anti-b's he's on now will start to tackle both things growing. And if it doesnt, that the infectious disease people can figure out a course that will tackle it.

Hope everyone is enjoying their holidays. Dont worry about us, besides being here, everything is going well. the girls and Nathan are staying with Grandma and Grandpa (I think I will need to bring home a BIG box of Tylenol for them when we get home), and despite everything, Josh is actually in pretty good spirits, although he is missing his Power Ranger show and is wanting to go home every now and again to watch it. As hard as Jon as tried, and as far as he's walked, he's been unable to turn up a copy yet... in fact he walked in a small little Pittsburgh college store here yesterday and they just laughed at him. What? never heard of a Super Hero before :-)

He did get cool Pitt Panther Tattoos that he has plastered to his bald little hear ;-)