Friday, July 15, 2005

hold the spinal...

Today was an uneventful trip. Josh was supposed to get his third Spinal Tap of this phase, but instead, because of the bad experiences he had the last two times, they sent us home and rescheduled the LP's for the following 2 weeks. So Josh was happy to escape clinic with a mere port access and once-over (twice ;-)) by his [two] onc-docs.

Just before we reached Pittsburgh though, about a half hour before, Josh started to get real anxious and kicked, cried and screamed the rest of the way. He just kept asking to go home and cried that he hated me.... I guess it wont be the last time. So anyway, it was nice to have a nice easy appointment. I'll never forget the look on Josh's face when Dr. Sara told him she wasnt going to touch him!

On the down side - Josh will now have to go to the operating room for future Spinal Taps so that they can put Josh to sleep beforehand. Well -- when we think of it, it's not really a bad thing. It may take more time and staff, but in the end, our Joshua will walk out of there less scared and ready to face the next visit with that much more bravery!

So next Thursday we have to be in Pittsburgh by 7:30. Yes! in the morning. *Yawn* We will have to leave Erie around 5:00. After Josh wakes up and recovers in the post-op room, we will head up to clinic for his check-up and blood counts.

Speaking of which. Thankfully his counts rose this week, and he did not need the blood transfusion after all. So even if they fall this coming week, we should still be within the acceptable limits.

Again -- thank you to everyone that continue to pray for Josh. We just know he will make it through the next three years like a champ and we pray ourselves that he finds the strength to continue on with the meds he detests taking and the pokes he's growing to accept. And we pray for our family and friends for all the love and support they offer us during this hard transition into this cancer-world we now call reality.


fay murray said...

FRIDAY, JULY 15, 2005 12:31 AM, CDT

I have been getting updates from maureen felder about josh, but it is nice to send a message and see a picture. you are a handsome young man. my prayers are with josh as he goes through treatment. God is good- keep the faith.

fay murray
ponchatoula, LA
United States

Jeannie Short said...

FRIDAY, JULY 15, 2005 03:16 PM, CDT

Hi Josh and family,

I'll be seeing you this coming Sunday at the ball field. I hope the weather holds out. Praying for you everyday, and keeping you in our thoughts always.

Love, Aunt Jeannie

Aunt Jeannie Short
Erie, PA
United States

Evelyn Mathes said...

FRIDAY, JULY 15, 2005 04:44 PM, CDT


I'm a friend of Maureen Felder. She has kept me posted on your progress. Will continue to remember all of you in my prayers. My husband had colon cancer 6 years ago and has had no re-occurance since. I pray that God be with all of you and pour forth his graces on you.

God Loves You,

Evelyn Mathes, Ponchatoula, La.

Marilyn Koehler said...

SATURDAY, JULY 16, 2005 12:14 AM, CDT

Hi Joshua and family! I am keeping you all in my thoughts and prayers. I hope God will give Joshua the ability to get through all this and come out a real trooper and survivor. I love you all.

Your cousin, Rebecca, turned 35 today. Same age as your daddy. You all will be hearing from me again in the next day or two.

Aunt Marilyn Koehler

Aunt Meme Stallsmith said...

MONDAY, JULY 18, 2005 06:02 AM, CDT

Hi Josh,

I had a very nice time yesterday at the fund raiser, even though every time it rained, your Gram and I got soaked by the water off the roof of the canopy. It was worth it!

The weather didn't seem to hamper any of the events and everyone was having fun.

I know you had fun too. Hope you're next visit to Pitts goes well for you!

Aunt Meme

Melissa Morgan said...

TUESDAY, JULY 19, 2005 10:58 AM, CDT

Josh and Family, I have been visiting your site to see the updates on all of you and I am amazed and the strength you have all demonstrated. With god's continued blessings and the support of you family and friends I am sure your strength will continue through these years to come. My best to all of you are you continue your journey.

Melissa Morgan
Palm, PA
United States

Krista Card said...

WEDNESDAY, JULY 20, 2005 02:03 PM, CDT

Hi Joshua, I wanted to let you know We are sending our prayers from Maryland. I'm your dad's cousin. I met you quite a few years ago as you were still a little boy- glad to hear you are a superhero fan. Those guys are Great!!!

All my Love,
Krista Card
Edgewater, MD

Tammy Castleberry said...

WEDNESDAY, JULY 20, 2005 03:34 PM, CDT

Josh & family,

Although we have never met (I met your dad when he came out for his sister's (Joy) funeral), I feel horrible that this is happening to all of you. No one deserves this, and nothing anyone says can take the pain away or make you "all better" unfortunately. I can only say that things happen to us all for reasons that we have no clue at to why, but shape us into the great human beings that we eventually turn into. I know that not only are we praying for you all, but many many others, that you do not even know, have added you all into their prayers.

We wish you strength and courage, as these times will be trying for sure. Some how, I know you will all be able to come through it with smiles on your faces.

Hugs, kisses, love & Prayers,

The Castleberry's

Elaine (aka Honeygirl, Reuben & Tammy)

Tammy Castleberry
Castaic, CA
United States